Hi, Im Harry Crowther, Im 18 years old and I have an extremely rare genetic disorder known as Atypical Progeria Syndrome (Non Classical Progeria) whereby I have a defect with the LAMIN A/C gene (LMNA).
Though not to be confused with the classical Hutchinson Guilford Progeria Syndrome (HGPS) - both are Premature Aging Disorders. I was diagnosed in the USA aged 7 years old. Together with my Mum I keep this blog. Hope you enjoy my story.
Tuesday, 2 February 2016
A Huge thank you to Martine & the team at Borg Warner turbosystems, Bradford, who have raised £1750.00 for Progeria UK. Thank you also to Sue Ibberson for nominating Harry