Hi, Im Harry Crowther, Im 18 years old and I have an extremely rare genetic disorder known as Atypical Progeria Syndrome (Non Classical Progeria) whereby I have a defect with the LAMIN A/C gene (LMNA).
Though not to be confused with the classical Hutchinson Guilford Progeria Syndrome (HGPS) - both are Premature Aging Disorders. I was diagnosed in the USA aged 7 years old. Together with my Mum I keep this blog. Hope you enjoy my story.
Monday, 3 August 2015
Harry & Zeus
On the 4th July, we welcomed Zeus, a border terrier puppy for Harry. Zeus has settled well and is an honorary member of Team Crowther.
They have a great friendship as you can see from the photo. They love to snooze together :)