Atypical Progeria Syndrome Harry's story

Hi, Im Harry Crowther, Im 24 years old and I have an extremely rare genetic disorder known as Atypical Progeria Syndrome (Non Classical Progeria) whereby I have a defect with the LAMIN A/C gene (LMNA). Though not to be confused with the classical Hutchinson Guilford Progeria Syndrome (HGPS) - both are Premature Aging Disorders. I was diagnosed in the USA aged 7 years old. Together with my Mum I keep this blog. Hope you enjoy my story.

Sunday 11 November 2012

Yorkshire Children of Courage & Achievement Awards 2012

Harry was nominated by Catherine Lacy, Manager at KIDS in Wakefield and won The Special Recognition Award for being the 'Pride of Yorkshire' at an evening of being very humbled and privileged to be in a room with such inspiring children who won awards for bravery, fundraising and carer of the year.

Sharing the evening with him was his Grandparents and his brother and sister. Brilliant job Harry xx

We'd like to thank Catherine for nominating Harry xx