Atypical Progeria Syndrome Harry's story

Hi, Im Harry Crowther, Im 24 years old and I have an extremely rare genetic disorder known as Atypical Progeria Syndrome (Non Classical Progeria) whereby I have a defect with the LAMIN A/C gene (LMNA). Though not to be confused with the classical Hutchinson Guilford Progeria Syndrome (HGPS) - both are Premature Aging Disorders. I was diagnosed in the USA aged 7 years old. Together with my Mum I keep this blog. Hope you enjoy my story.

Saturday 10 March 2012

Those pesky tight Hamstrings!

Part of Harry's Progeria leaves him with extremely tight hamstrings, and when Harry is barefoot he, continually walks on this tip toes. After a recent hydrotherapy session his physio noted that his hamstrings on his right leg are really tight which causes Harry to have continual aches and pain in his legs on top of the arthritis.

So she has suggested that he should have an appointment to have a splint fitted, which he will wear for 30 minutes a day to strengthen his hamstrings and believe me Harry really does not like to do his physiotherapy exercises for his hamstrings. So at this present time we are awaiting an appointment to see the specialist. I'll up date later.