Hi, Im Harry Crowther, Im 24 years old and I have an extremely rare genetic disorder known as Atypical Progeria Syndrome (Non Classical Progeria) whereby I have a defect with the LAMIN A/C gene (LMNA).
Though not to be confused with the classical Hutchinson Guilford Progeria Syndrome (HGPS) - both are Premature Aging Disorders. I was diagnosed in the USA aged 7 years old. Together with my Mum I keep this blog. Hope you enjoy my story.
Harry
Saturday 19 November 2011
Christmas Lights
Very Proud of Harry tonight as he represented Mirfield & Huddersfield in switching on the towns Christmas Lights along with 3 other inspirational children, Cobie, Callum & Ben. Well done so very proud of you
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