Hi, Im Harry Crowther, Im 24 years old and I have an extremely rare genetic disorder known as Atypical Progeria Syndrome (Non Classical Progeria) whereby I have a defect with the LAMIN A/C gene (LMNA).
Though not to be confused with the classical Hutchinson Guilford Progeria Syndrome (HGPS) - both are Premature Aging Disorders. I was diagnosed in the USA aged 7 years old. Together with my Mum I keep this blog. Hope you enjoy my story.
Harry
Wednesday 25 August 2010
Progeria Reunion - Newspaper article
With reference to the Progeria reunion Harry attended with Hayley & his new friends. I know Ive said it before but thank you again to those of you who helped & donated..xxx
Please see the link to the right of this post Thank you
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