Atypical Progeria Syndrome Harry's story

Hi, Im Harry Crowther, Im 24 years old and I have an extremely rare genetic disorder known as Atypical Progeria Syndrome (Non Classical Progeria) whereby I have a defect with the LAMIN A/C gene (LMNA). Though not to be confused with the classical Hutchinson Guilford Progeria Syndrome (HGPS) - both are Premature Aging Disorders. I was diagnosed in the USA aged 7 years old. Together with my Mum I keep this blog. Hope you enjoy my story.

Thursday 24 June 2010

Harry's Hot Tub

Harry's hot tub/jacuzzi is now here and Harry has been in. Its not quite warm enough yet but he couldnt wait to have a turn. The warm water & jets will help ease the discomfort of his arthritis & joint pain and its big enough for him to do his exercises that his physiotherapists do with with when he has hydrotherapy.
A big big thank you to my family & friends for their help in getting everything ready from the digging out the soil, to laying the base & doing the electrics. A huge big thank you goes to DRL Limited/Appliances on line & Jacuzzi for kindly giving the hot tub/jacuzzi to Harry as an amazing gift. We can not begin to thank you enough for your kindness.