Atypical Progeria Syndrome Harry's story

Hi, Im Harry Crowther, Im 24 years old and I have an extremely rare genetic disorder known as Atypical Progeria Syndrome (Non Classical Progeria) whereby I have a defect with the LAMIN A/C gene (LMNA). Though not to be confused with the classical Hutchinson Guilford Progeria Syndrome (HGPS) - both are Premature Aging Disorders. I was diagnosed in the USA aged 7 years old. Together with my Mum I keep this blog. Hope you enjoy my story.

Tuesday 27 April 2010

Harry's Story

http://news.sky.com/skynews/Home/video/Ageing-Boy-Harry-Crowther-Who-Ages-Five-Times-As-Fast-As-The-Average-Person-Due-To-A-Genetic-Disorder/Video/201004415621117?lpos=video_+News_in_Video_Home_Region_0&lid=VIDEO_15621117_Ageing_Boy_Harry_Crowther,_Who_Ages_Five_Times_As_Fast_As_The_Average_Person_Due_To_A_Genetic_Disorder

Please find above a link to a news story we have done with Harry to raise awareness for his genetic disorder.

We're so proud of Harry for doing such a wonderful job..

Atypical Progeria Syndrome Harry's story

Harry

Tuesday 27 April 2010

Harry's Story

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Harry with his Medal for Meritorous Conduct

Harry - Dec 2009 aged 10 years & 10 months